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Thank you for checking out our website/blog. By journaling and updating this website we will attempt to keep friends and family up to date on what is going on inside our lives. Living with a terminal illness (ALS) and demonstrating how God is working in our lives to bring Him glory during this trial. We appreciate your gracious prayers and support during this season of our lives! We Love You All So Much!




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Monday, March 9, 2009

So many things left unsaid






Hi Everyone,
It is late and I can't find sleep tonight. We have many nights like this and my mind keeps thinking of all of the things I wish we could have shared tonight at the church service at Wellspring. We haven't shared our testimony in a long time and about what it is like living with a terminal disease and we were somewhat unprepared tonight (well, at least I was) We were overwhelmed by seeing a sea of faces that came from near and far to support us tonight and the familiar faces of our church body listening to "our story". It means so much to us, the love and support we have from so many. We want to thank all of you for your love! I thought we were going to just answer Pastor Gary's questions tonight, but Eric (who loves to talk and share) took us way back tonight to his childhood and his need to be loved and feelings of rejection that followed him throughout his life. I know it brought back some feelings in his family of life growing up (many of his aunts and cousins who we rarely see came into town) All of us can relate to struggles in childhood and past experiences that left hurts or insecurity. I know people in my own family struggle with feelings of self worth and inadequacy. I know that these feelings have carried forward from generation to generation and have put us in bondage to that generational sin.
Eric brought you through our relationship when we met and got married and the struggles we had. We were on a path to destruction in our marriage. I am so grateful for the day that my husband gave his life to Christ and the changes that God made in his heart that was now filled in a way that no thing or person in this world could fill. It changed our life, our story, our kids lives and their children's lives. It broke the chains of bondage that Satan had on us.
"You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives." Genesis 50:20
We have come through so much since that day. We have had legal battles, miscarriages, loss of jobs, overwhelming debt, deaths in our families and loved ones, and this terminal diagnosis. I know many of you have similar stories. But our God is so much bigger than all of these things and He has carried us through all of these things in such powerful ways we should be shouting it from the rooftops!
My son, Zach said we should read the verse More than conquerors when we asked him if he had anything to say (he actually whispered that to me) This was the theme verse for our fundraiser last year and I had thought I had that on my sheet and knew it was from Romans 8, but was not prepared to share it. Pastor Gary knew that it needed to be shared because God put in on his heart while we were speaking and he shared it at the end and I want to share it again with you:
Romans 8:36-40
As it is written:
"For your sake we face death all day long; we are considered as sheep to be slaughtered." No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.

Amen and Amen!!!!! Thank you Jesus for bridging that gap for us!
If you haven't read the book of Romans it is so powerful!
I am so proud of Eric and my children. I believe Zach wanted to share tonight that people who look at him at school and at play outside of our home, don't have any clue what he is going through. He has come home crying some days because people just don't understand and it just breaks my heart. His life is not your average 12 year old's life and he has matured more than he should have needed to going through this disease with us. I know that God sees his struggles and his pain and he LOVES Zach and He understands. Who endured more than God when He sent his own son to be crucified for our sins. Zach has a heart for God and is so much like Eric. He loves music (and sports) like his dad. Our kids are watching our every move and they want to be just like us. We need to lead by example (Christ as our role model) Do we mess up? Oh yes!!! We are so far from being perfect, but God loves us anyway!!!
Then my beautiful daughter Madison, who gets her hair and her mischievous grin from her dad ran up at the last minute to sit with us. She was signing numbers to grandma and waving periodically to people and pointing out her stamps on her hand and handing me a rubber duck while on stage with us. That girl has a free spirit and I have been told repeatedly throughout her 6 years of life by Eric's parents how much she is like her dad! It doesn't surprise me because I know I was never that naughty!! :) We love her dearly and I know that she is processing all of what we go through and doesn't quite know how to deal with her emotions at this age but when we are sad, she comes and places her hand on ours or just hugs us. I pray that she will come to know Christ at a young age so she can live the life God wants for her and not go through the things we learned the hard way!
We forgot to show the video of what it is like living with ALS that my dad made a year ago. If you haven't already seen it, I think it is a link on the right of our blog page. The night really didn't focus around living with ALS and I pray that God used us to share with people the powerful change He brings when we ask him into our hearts and accept him as our Saviour! If you haven't done this and feel God tugging on your heart, we would love to pray with you and share his free gift with you. We don't know when we will take our last breath. Life is so short here on this earth, but eternity is FOREVER with Christ! That just puts it into perspective. Life is not about us, we were created for HIS GLORY by HIM. People always tell me how strong I am, and sometimes I wonder if people think I just don't have feelings because I don't always cry, but Christ has given me such a peace about where Eric is going if he should pass away from ALS or anything else that I don't think about that. I treasure every moment that God gives us together. I am so happy and blessed. I focus on that so I don't cry every day and wallow in self pity. I have no idea what the future holds, but neither do you. I am a person who likes to be in control of things (just ask Eric) but I have NO control here. That's how God wants it, can you imagine what life would be like if we were in control?? CHAOS!!!
We were overwhelmed by the applause and some of you standing to your feet and I really hope that wasn't for us, but for God and what he is doing. We know you love us so much and so many of you are praying for us. We know the road may get harder and we know you will come along side us and most of all God will see us through!
I was reminded recently in studying Moses life that it is God's privilege to provide for us and it is our privilege to trust and obey.
Matthew 6:33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. So true, God provides all our needs when we seek and trust Him.
My daily study bible which I have failed to pick up for a very long time brought me again to Numbers where Joshua and Caleb said, let's go to the promised land that God has given us while the 10 others said no, there are too many obstacles in our way.
I love quoting Charles Stanley so I will do it again "Joshua and Caleb lived to see the Promised Land, but only because they focused on the goal God had laid out for them and not on the obstacles standing in the way. The blessings God has in store for you are just as rich! Never allow shortsighted vision - especially one focused on obstacles - to block the far-reaching plan of the Lord." What a great reminder!
Philippians 3:14
I press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus.
Our goal is not anything here on this earth, our goal is heaven and reaching as many people as we can to Jesus while we are here. I know God is not finished with us yet, hence the incorrect title of Eric's e-mail to some of you called "my last speech" His voice might go, but there are other ways to share the message and we pray that He will continue to use us for His glory.
Well, this was much longer than I had planned but there were many things that I didn't share that were consuming my thoughts. Hopefully now I will find rest.
God bless you all!!
Lori
Thanks for the photos so quickly, Joel

P.S. My dad and brother video taped the evening, if you would like a copy, let us know. It may take a while but we will have one. We video everything now for our kids and others who we can impact if Eric loses his voice.

10 comments:

JPN said...

Thank you for writing from the heart, and for sharing as the Spirit lead last night. It was a touching experience to hear all of the things you've been through and the way that God is using you all now. Knowing that your family came from far and wide was one more element that made the serice that much more touching. Our prayers are with you.

Joel

JPN said...

Lori,
here is a link to some pictures of last night. Copy any you want, and I will remove any you want. I have more as well....http://www.facebook.com/album.php?aid=66362&id=556621725&ref=mf

Joel

Anonymous said...

my dear beautiful friends..........thank you, thank you for listening to the spirit and sharing from your heart! We prayed here from the East Coast, and just felt such a peace that you were covered. And by writing more last night, you helped those of us who couldn't be there feel a part of it. I needed the last paragraph about Joshua and Caleb.....thank you. We love you! DaNae

Anonymous said...

You guys are so amazing....because God is so amazing! Jesus was shining VERY brightly through all of you last night. It was so beautiful! We love you!

anne said...

thanks for sharing from your heart, Lori! Such good reminders for all of us. Wish we could have been there...
love ya,
Anne

Anonymous said...

I realy enjoyed hearing your testimony last night Keep up the greay work for God's Kingdom-kim

Anonymous said...

i just wanted to tel you thank you! Thank you for your honesty, thank you for being shepherds. The two of you have been huge, welcome influences in our lives for many years now, probably before you really even knew! It is by your faith and dedication, that we were shown onto a narrow path. You are constantly in our thoughts and prayers. What a blessing your lives are to us!

Unknown said...

Your family has such a strong testimony. Thanks for sharing on this blog..We continue to pray for all of you. You are all such a blessing to us and the community. There is no love deeper than the love of Christ. Continue to lean on HIM!! love and misses, The Marschner's

Kerry Siereveld said...

Beautiful post Lori - I wish I could've been there to hear you guys speak. You have an amazing and beautiful family - both inside and out!

Anonymous said...

Thank you for your post and your story of hope. I don't know you, but I will be praying for your family. I also ask that you will pray for me and my husband. We are going through the same struggles that you had before your husband got ill. I'm praying that it won't take a serious illness to have my husband's heart change.

Family is FOREVER

Family is FOREVER