Letters by Zach Fox

Below are two letters written by my son, the first one is when he was in fifth grade and the second is in sixth grade, last year.

We are so proud of Zach, his writting is very deep for a twelve year old. As you can imagine he went through a lot of emotions, as you can tell from his writtings.

Fear of Death
06/04/08

Imgine a strong, faithful man with a loving family. Now picture that same man with a fatal disease called ALS who can't use his arms or legs practically at all. This isn't just a story, it's the truth. Can you guess who this man is? Yes, he's my dad.

It all started when my dad couldn't button his shirt one Sunday morning. Now he still has a family, but needs them every minute of the day to help him with everyday things like dressing him, shaving him, giving him showers, feeding him and helping him get up from sitting down. I've had some doubts that were all answered, but one still sticks tightly in my head and heart. Is my dad going to die? It keeps bouncing in my head and I can't help but cry untill I can't cry any more. I'm so confused, but yet it's so clear that it's a life or death situation.

I almost have no way to help him except pray and hope God wil cure my dad and thousands of others. Right now, there is hope that they will find a cure because I don't want to NOT have a daddy. Losing my dad would be like getting shot in the gut. I would still be alive, but I would wish I wasn't. For me, I would do anything, anything, anything to keep my dad alive, and see his joyful sunshine on his face. Let's anticipate that they will find a cure for ALS for thousands of others who have ALS as well.

Zach Fox
5th grade




Be Happy
06/03/09

Many people don't know that our family has been going through tough times since my dad has ALS. I think it's important to know that poeple can still be happy no matter how tough times are. For instance, my dad always has a good attitude while dealing with his disease. Another reason is my mom is still really helpful to our whole family and others. Also, my sister is so happy even though she is so young to have her own dad get a terrible, breath taking disease called ALS. Finnally, although I have to live with the fact that my dad could die in a couple of years it has tuaght me the responsibility to be the man of the house and to treasure life.

My dad still has a positive attitude while living with ALS. For example, I asked my dad a question, "How do you not get down at not being able to do the things you used to do?" He answered, "I focus on the things I can do, that God has given me the ability to encourage others. My faith helps sustain me. Somedays are better than others." Also my dad's favorite quotes are, "Don't worry, be happy!" and "Its all good!" These sayings help us laugh and forget what we were currently sad about.

Another reason is, even though there are 8,000 new cases of ALS patients per year in the U.S. and 30,000 present cases today, people can still choose to live their life for the better and be happy like we have done or just wait untill it's time to die. Hopefully most all of us, even the people who don't have a disease will choose to be happy.

My mom is really helpful to our family because although her husband has a terminal disease, she still works hard to run our family. For example, I asked my mom this question, "How are you so mentally strong even though you are going through this tough time?" She answered, "God gives me the strength to get through the tough times. People are praying for our family. My comitment to dad when we got married is a vow that I wont break." Also, she loves him very much. I can't believe that my mom is so happy and strong even though the unthinkable happened. The things she does for us is way more than any mom should do. Now my mom does tons of things for our family. She cooks delicious meals that make my mouth water. She takes care of my dad's daily needs because he is unable to himself. She stays strong by her amazing faith in God who gives her strength to live each day. She helps me with my homework when I give up because I think there is no way I could finish the humungus stack in front of me. She handles situations way better that I could ever think of even trying to do. She is my super mom.

It's hard to believe that my sister can be so happy even though our whole family is going through tough times. For example, my sister loves to make up new games. Like one day she walked up to me and excitedly said, "Hey Zach, I have a good idea for a game we can play." "What is it?" I asked back. Her smile was growing every second. "You pull me across the floor on a blanket and see how fast I can go," she replied. "I do what?" I asked enthusiastically. She repeated what she said again and I just did what she said. She laughed and screamed with glee when I shot her across the living room's wooden floor. I'll never forget that day when she made me forget about my dad's illness and have fun like we used to. Also, my sister is such a good encourager. My sister makes up fun games and plays them with the whole family. My sister is very sincere and loving when someone is really sad or down. My sister makes us laugh when we could be crying. My sister sometimes gets on all of our last straws, but most of all, my sister is my sister and that means the whole world to me. Yes, I love my sister and I wouldn't rather have any other sister in the whole world but her because she brings me up when I'm down about something. She helps me be happy through the tough times.

Even though its hard to live with the fact that my dad has ALS , I have gained a lot of responsibility. I was eleven my dad hollered, "Zach." He was upstairs watching TV and needed help. I was down stairs in the basment playing with legos and watching TV at the same time. "Coming!" I shouted back. I bolted upstairs to see what my dad needed. "Hey, can you get me a glass of water?" my dad asked. He of course looked desperate for a drink of water. "Sure," I said getting him a glass of water. "Thanks Zach" my dad replied the second after he took a sip from the clear glass cup. "Your welcome!" I exclaimed. I always feel realy good about myself when I do something nice for my dad.

Recently I surveyed the class if they would cry if they found out their dad had a fatal disease and was given 2-5 years to live. One hundred percent of the class said they would cry, of course. I cried when I found out, I cried alot. But God wants me to rejoice in it because I know where he's going and I'll be there to meet him someday. I realize that when I am happy, I feel like I can enjoy life more. Clearly people can still be happy no matter how tough times are because if our whole family can still be happy through our tough times, others can choose to be happy as well. It's your choice to be happy or sad or mad, make it a good one.

Zach Fox
sixth grade