Friday was a full day. It started out with an early trip to the VA clinic. We are trying to get a prescription for Rilutek covered for Eric which is the only medically approved drug for ALS. It is very expensive. We have been holding off starting this drug due to reservations about it's effectiveness, however, Eric is now taking Lithium due to a new study in Italy that has positive results of slowing the progression of ALS. We found out that it works hand in hand with Rilutek. Please pray that the VA will approve this drug with no copay for Eric since it is not on their list. We should know in a couple weeks.
We stopped off at the ALS Association downtown and visited briefly with Denise George who has been a wonderful support and met Marie who is new to the office. Eric ran into an old friend from Pine Ridge Bible Camp which was a nice surprise.
We had an interview at our house with Rev. Rex Wilson of the 4C (Conservative Congregational Christian Conference) churches so that Eric can be used by sharing his testimony at churches which went really well. We are excited to see how God uses this to glorify Him and build his Kingdom.
Then Eric fell asleep on the couch and the dog curled up on him and snoozed too. He has been such a blessing to our family. He has adjusted unbelievably well and is so good! He just loves to be around us and hates it when we have to leave. It may sound strange to say this, but we have been praying about the right dog for our family considering our needs and situation and here he is! Still thinking of a new name for him or Prince will just stick. So far we have Chance, Lucky, Ben, Trotter and Pirate or Dragon(nephew Nathan's ideas) Any more ideas?
Eric and Zach went to the Griffin's game last night with some neighbors and guys from church. It was former Red Wing, Darren McCarty's home debut with the Griffins. He did not dissappoint as he scored a hatrick! They won 6-3... It was an exciting game and great to see the arena packed out. It was really good fellowship with some good friends. Thank you to Erick Apol for the invite and tickets. I don't get out as much lately and it was just what I needed! Finally fell into bed after midnight! Looking forward to going to church tomorrow since we had a snow day last week due to our wonderful Michigan snow storms we have been having!
We are excited to share that we are taking a road trip next Thursday for 6 days to Tennessee to visit Lori's cousins since Zach is on winter break. We will again try to bring a little sunshine back with us. We are even taking the dog!
Thank you to our friends and family for your continued prayers and love.
In Christ who strengthens me,
Eric
1 comment:
Hi. You don't know me but I've become aquainted with your website through Brian and Kristi's blog. I am inspired and humbled by both of your families strong faith in God and your positive attitudes in the midst of very troublesome and trying times. You are in my thoughts and prayers. Now, I've been pondering your requests for ideas for a possible name for your newest member of your family and since it is obvious he has brought much joy and brightness (i.e., sunshine and light) to your family at a very crucial time how about BEACON? A light in the midst of the darkness. Sending love and many, many prayers your way.
Cyndi Davis
Ada, OK
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