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Thank you for checking out our website/blog. By journaling and updating this website we will attempt to keep friends and family up to date on what is going on inside our lives. Living with a terminal illness (ALS) and demonstrating how God is working in our lives to bring Him glory during this trial. We appreciate your gracious prayers and support during this season of our lives! We Love You All So Much!




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Monday, May 18, 2009

A night with our Harley Friends and MDA


Last Friday was the Black and Blue Ball for MDA to raise funds for research for ALS and many forms of Muscular Dystophy and to send kids to camp. Black and Blue meant to wear leather or blue jeans or your Harley gear in which department we are lacking. MDA asked Eric if he would come and share his story of living with ALS that night so we were off to the event which was very well put together. There was a silent and live auction, dinner, speakers, free photos on a Harley (as you can see above my first time on a Harley) It was a wonderful night and I was so proud of Eric when he spoke in front of over 400 people about how the only way he gets through life is with God's help and by our faith. He talked about ALS and thanked them for their help that night and shared the hope we have in Jesus Christ because he knows where he is going. I know that God spoke to someone that night through his testimony. We also met some inspiring people like Alex who has Duschanes Muscular Distrophy who sat at our table and spoke so well and brought tears to our eyes. Life is such a gift that we take for granted. We also had a woman named Elizabeth at our table who spoke who had lost her husband 11 years ago to ALS. We meet people like this all the time who inspire us and encourage us.
We had a good weekend despite some difficulties at night sleeping. The kids are keeping us busy as usual with ball schedules. We are looking forward again to some sunshine this week.

Please keep in your prayers on Wednesday this week a friend, Gloria from our church who is having a serious surgery on her trachea. Gloria gets short winded easily and she still was at our house a few weekends ago spreading bark with her family. That inspires me to not look at things you can't do, but to keep doing what you can.
God Bless you all!
Lori

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Family is FOREVER

Family is FOREVER